Hear me out!
I couldn’t continue consistently with the Afrobloggers challenge because of circumstances butttt last week was advocacy week and I tried so hard to advocate for one thing that’s really dear to my heart.
I might be a little late but is it ever late to advocate? So, I’m just going to go ahead and tell you what it is!
It is World Sickle Cell Day and there couldn’t have been a better time to say how I feel about this and share some of the questions I have.
I have always heard of people who live with sickle cell and to be very honest, I didn’t think too much about it. That changed in 2019
I started following Precious Gaza! I loved how articulate she was. How every single tweet and post helped me in every way. I began to love her. One day, I realized that she had sickle cell. Jesus, I was so heartbroken. I was pained.
Precious shares her life living with sickle cell. The experience is painful and I’m putting it mildly here. I’ve cried and prayed because of this.
Now, her talking about it made me care more and worry about other people living with sickle cell.
My mom has a friend who lives with sickle cell and I’ve heard her say that it drains and sucks every single money the person makes. Not to think of the emotional trauma it could be causing.
It pains me that a lot of people live with this. I checked Google and saw that it is also called a “disease”. I tried typing it that way but I couldn’t do that. Is it? Should we call it that?😪
There’s a solution for this but before we go into that, I’d like to state the first and more important thing!!!
Man, woman, boy, girl? Get yourself tested. Please check your genotype. Know your genotype. You do not want to be the reason a child is born into this world to suffer pain. I will not be able to live with myself if I ever do that.
Here’s a compatibility list so you don’t birth a sickle cell baby;
That said, here’s the solution to sickle cell.
Bone marrow transplant
Three words. These three words hurt me even more. Why?
It ranges from $100,000- $350,000 to get a bone marrow transplant!!!!
Did you read that? Yeah, you read that right. It costs that much for a human being like you and me to feel better and healthy. It sucks, I know.
Why is it so expensive? I have asked myself this question so many times! It so so painful to see that for a person to want to live healthily they have to pay so much money for that😪
It is so sad that the health care system is so expensive.
If we want to go on, you’d be so sad and sick of how the health care system work.
Below are links for you to know more about this
Now, there’s something you can do. Please. Since the health care system has to be this expensive, Precious’s friends created a gofundme account for this cause.
They tagged it #BMTForPreshGaza.
They are looking to raise $200,000 for Precious to get a bone marrow transplant. This is what has been raised so far. See the picture below.
Please, help Precious get a bone marrow transplant. She has so much energy. I’ve met her just once and she’s so lovely. The work that she does living with sickle cell will tremendously increase after this is done.
Would you like to donate? Here’s the link to do that.
Do you want to know more about Precious Gaza?
Find her on IG and Twitter @preshgaza
Follow the movement #BMTForPreshGaza too
Hey warrior, I want you to know that I love you, and I understand that some days it’s extremely unbearable for you.
I’m sorry that you have to go through this. I apologize on behalf of the health care system. They didn’t have to make it so expensive to be treated but they did.
You’re a warrior! Fighting through life strongly and I celebrate YOU! 💙💙💙💙💙
If you’ve ever lost anyone to sickle cell, my condolences.
Remember, know how compatible you are with your partner before you guys hit it. I’d be mad at parents if I see that 2-5 years from now children are living with sickle cell.
Let’s do better, please.
Also, note that I am not in any way related to medical practices. I am just a girl who is concerned and not happy about this.
People shouldn’t live with sickle cell and if you can help prevent this, you should do it.
Love, Sylvia Ideh💙